Quality of Life and Subjective Burden on Family Caregiver of Children with Autism

Omaima Ezzat; Magda Bayoumi; Osama A Samarkandi

doi:doi:10.11648/j.ajns.20170601.15

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Quality of Life and Subjective Burden on Family Caregiver of Children with Autism

Omaima Ezzat, Magda Bayoumi, Osama A Samarkandi

Published in American Journal of Nursing Science (Volume 6, Issue 1)

Received: 29 November 2016 Accepted: 8 December 2016 Published: 23 January 2017

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Abstract

Background: Caring for children with autism has been affected on caregivers’ health outcome and cause high stress levels and health disturbance on family caregiver. Aim: the main aim of the present study was to assess the quality of life and subjective burden on family caregiver of children with autism. Methods: A quasi-experimental design was carried out in the primary and preparatory school in Beni-Suef City from November 2015 to January 2016. Data were obtained from a total of 86 caregivers, 36 caregivers as interventional group and 50 caregivers as control group were interviewed by using Zarit Burden Interview (ZBI) and QoL.SF 36-item. Results: All caregivers in the study and control group were female; they also had the same age. The findings reported a significant difference between caregivers of autistic and control groups in burden levels, and around half of autistic caregivers (47.2%) have sever level. Moreover autistic caregivers reported significantly lower quality-of-life, compared with control group in physical functioning and energy/fatigue. Conclusion: caregivers of children with autism show higher levels of burden and lower level of QoL compared to control group. Thus further research is needed to identify coping strategies that can decrease overall burden on family caregiver.

Published in	American Journal of Nursing Science (Volume 6, Issue 1)
DOI	10.11648/j.ajns.20170601.15
Page(s)	33-39
Creative Commons	This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited.
Copyright	Copyright © The Author(s), 2024. Published by Science Publishing Group

Keywords

Quality of Life, Subjective Burden, Family Caregiver, Autism

References

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APA Style

Omaima Ezzat, Magda Bayoumi, Osama A Samarkandi. (2017). Quality of Life and Subjective Burden on Family Caregiver of Children with Autism. American Journal of Nursing Science, 6(1), 33-39. https://doi.org/10.11648/j.ajns.20170601.15

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ACS Style

Omaima Ezzat; Magda Bayoumi; Osama A Samarkandi. Quality of Life and Subjective Burden on Family Caregiver of Children with Autism. Am. J. Nurs. Sci. 2017, 6(1), 33-39. doi: 10.11648/j.ajns.20170601.15

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AMA Style

Omaima Ezzat, Magda Bayoumi, Osama A Samarkandi. Quality of Life and Subjective Burden on Family Caregiver of Children with Autism. Am J Nurs Sci. 2017;6(1):33-39. doi: 10.11648/j.ajns.20170601.15

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@article{10.11648/j.ajns.20170601.15,
  author = {Omaima Ezzat and Magda Bayoumi and Osama A Samarkandi},
  title = {Quality of Life and Subjective Burden on Family Caregiver of Children with Autism},
  journal = {American Journal of Nursing Science},
  volume = {6},
  number = {1},
  pages = {33-39},
  doi = {10.11648/j.ajns.20170601.15},
  url = {https://doi.org/10.11648/j.ajns.20170601.15},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.ajns.20170601.15},
  abstract = {Background: Caring for children with autism has been affected on caregivers’ health outcome and cause high stress levels and health disturbance on family caregiver. Aim: the main aim of the present study was to assess the quality of life and subjective burden on family caregiver of children with autism. Methods: A quasi-experimental design was carried out in the primary and preparatory school in Beni-Suef City from November 2015 to January 2016. Data were obtained from a total of 86 caregivers, 36 caregivers as interventional group and 50 caregivers as control group were interviewed by using Zarit Burden Interview (ZBI) and QoL.SF 36-item. Results: All caregivers in the study and control group were female; they also had the same age. The findings reported a significant difference between caregivers of autistic and control groups in burden levels, and around half of autistic caregivers (47.2%) have sever level. Moreover autistic caregivers reported significantly lower quality-of-life, compared with control group in physical functioning and energy/fatigue. Conclusion: caregivers of children with autism show higher levels of burden and lower level of QoL compared to control group. Thus further research is needed to identify coping strategies that can decrease overall burden on family caregiver.},
 year = {2017}
}

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TY  - JOUR
T1  - Quality of Life and Subjective Burden on Family Caregiver of Children with Autism
AU  - Omaima Ezzat
AU  - Magda Bayoumi
AU  - Osama A Samarkandi
Y1  - 2017/01/23
PY  - 2017
N1  - https://doi.org/10.11648/j.ajns.20170601.15
DO  - 10.11648/j.ajns.20170601.15
T2  - American Journal of Nursing Science
JF  - American Journal of Nursing Science
JO  - American Journal of Nursing Science
SP  - 33
EP  - 39
PB  - Science Publishing Group
SN  - 2328-5753
UR  - https://doi.org/10.11648/j.ajns.20170601.15
AB  - Background: Caring for children with autism has been affected on caregivers’ health outcome and cause high stress levels and health disturbance on family caregiver. Aim: the main aim of the present study was to assess the quality of life and subjective burden on family caregiver of children with autism. Methods: A quasi-experimental design was carried out in the primary and preparatory school in Beni-Suef City from November 2015 to January 2016. Data were obtained from a total of 86 caregivers, 36 caregivers as interventional group and 50 caregivers as control group were interviewed by using Zarit Burden Interview (ZBI) and QoL.SF 36-item. Results: All caregivers in the study and control group were female; they also had the same age. The findings reported a significant difference between caregivers of autistic and control groups in burden levels, and around half of autistic caregivers (47.2%) have sever level. Moreover autistic caregivers reported significantly lower quality-of-life, compared with control group in physical functioning and energy/fatigue. Conclusion: caregivers of children with autism show higher levels of burden and lower level of QoL compared to control group. Thus further research is needed to identify coping strategies that can decrease overall burden on family caregiver.
VL  - 6
IS  - 1
ER  -

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Author Information

Omaima Ezzat

Mental Health & Psychiatric Nursing, Nursing Faculty, Beni-Suef University, Beni–Suef, Egypt
Magda Bayoumi

Medical Surgical Nursing, Nursing Faculty, Beni -Suef University, Beni–Suef, Egypt
Osama A Samarkandi

Nursing Informatics, Prince Sultan College for Emergency Medical Services, King Saud University, Riyadh, KSA

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Plain Text BibTeX RIS

APA Style

Omaima Ezzat, Magda Bayoumi, Osama A Samarkandi. (2017). Quality of Life and Subjective Burden on Family Caregiver of Children with Autism. American Journal of Nursing Science, 6(1), 33-39. https://doi.org/10.11648/j.ajns.20170601.15

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ACS Style

Omaima Ezzat; Magda Bayoumi; Osama A Samarkandi. Quality of Life and Subjective Burden on Family Caregiver of Children with Autism. Am. J. Nurs. Sci. 2017, 6(1), 33-39. doi: 10.11648/j.ajns.20170601.15

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AMA Style

Omaima Ezzat, Magda Bayoumi, Osama A Samarkandi. Quality of Life and Subjective Burden on Family Caregiver of Children with Autism. Am J Nurs Sci. 2017;6(1):33-39. doi: 10.11648/j.ajns.20170601.15

Copy | Download

@article{10.11648/j.ajns.20170601.15,
  author = {Omaima Ezzat and Magda Bayoumi and Osama A Samarkandi},
  title = {Quality of Life and Subjective Burden on Family Caregiver of Children with Autism},
  journal = {American Journal of Nursing Science},
  volume = {6},
  number = {1},
  pages = {33-39},
  doi = {10.11648/j.ajns.20170601.15},
  url = {https://doi.org/10.11648/j.ajns.20170601.15},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.ajns.20170601.15},
  abstract = {Background: Caring for children with autism has been affected on caregivers’ health outcome and cause high stress levels and health disturbance on family caregiver. Aim: the main aim of the present study was to assess the quality of life and subjective burden on family caregiver of children with autism. Methods: A quasi-experimental design was carried out in the primary and preparatory school in Beni-Suef City from November 2015 to January 2016. Data were obtained from a total of 86 caregivers, 36 caregivers as interventional group and 50 caregivers as control group were interviewed by using Zarit Burden Interview (ZBI) and QoL.SF 36-item. Results: All caregivers in the study and control group were female; they also had the same age. The findings reported a significant difference between caregivers of autistic and control groups in burden levels, and around half of autistic caregivers (47.2%) have sever level. Moreover autistic caregivers reported significantly lower quality-of-life, compared with control group in physical functioning and energy/fatigue. Conclusion: caregivers of children with autism show higher levels of burden and lower level of QoL compared to control group. Thus further research is needed to identify coping strategies that can decrease overall burden on family caregiver.},
 year = {2017}
}

Copy | Download

TY  - JOUR
T1  - Quality of Life and Subjective Burden on Family Caregiver of Children with Autism
AU  - Omaima Ezzat
AU  - Magda Bayoumi
AU  - Osama A Samarkandi
Y1  - 2017/01/23
PY  - 2017
N1  - https://doi.org/10.11648/j.ajns.20170601.15
DO  - 10.11648/j.ajns.20170601.15
T2  - American Journal of Nursing Science
JF  - American Journal of Nursing Science
JO  - American Journal of Nursing Science
SP  - 33
EP  - 39
PB  - Science Publishing Group
SN  - 2328-5753
UR  - https://doi.org/10.11648/j.ajns.20170601.15
AB  - Background: Caring for children with autism has been affected on caregivers’ health outcome and cause high stress levels and health disturbance on family caregiver. Aim: the main aim of the present study was to assess the quality of life and subjective burden on family caregiver of children with autism. Methods: A quasi-experimental design was carried out in the primary and preparatory school in Beni-Suef City from November 2015 to January 2016. Data were obtained from a total of 86 caregivers, 36 caregivers as interventional group and 50 caregivers as control group were interviewed by using Zarit Burden Interview (ZBI) and QoL.SF 36-item. Results: All caregivers in the study and control group were female; they also had the same age. The findings reported a significant difference between caregivers of autistic and control groups in burden levels, and around half of autistic caregivers (47.2%) have sever level. Moreover autistic caregivers reported significantly lower quality-of-life, compared with control group in physical functioning and energy/fatigue. Conclusion: caregivers of children with autism show higher levels of burden and lower level of QoL compared to control group. Thus further research is needed to identify coping strategies that can decrease overall burden on family caregiver.
VL  - 6
IS  - 1
ER  -

Copy | Download