Quality of Life and Subjective Burden on Family Caregiver of Children with Autism
American Journal of Nursing Science
Volume 6, Issue 1, February 2017, Pages: 33-39
Received: Nov. 29, 2016;
Accepted: Dec. 8, 2016;
Published: Jan. 23, 2017
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Omaima Ezzat, Mental Health & Psychiatric Nursing, Nursing Faculty, Beni-Suef University, Beni–Suef, Egypt
Magda Bayoumi, Medical Surgical Nursing, Nursing Faculty, Beni -Suef University, Beni–Suef, Egypt
Osama A Samarkandi, Nursing Informatics, Prince Sultan College for Emergency Medical Services, King Saud University, Riyadh, KSA
Background: Caring for children with autism has been affected on caregivers’ health outcome and cause high stress levels and health disturbance on family caregiver. Aim: the main aim of the present study was to assess the quality of life and subjective burden on family caregiver of children with autism. Methods: A quasi-experimental design was carried out in the primary and preparatory school in Beni-Suef City from November 2015 to January 2016. Data were obtained from a total of 86 caregivers, 36 caregivers as interventional group and 50 caregivers as control group were interviewed by using Zarit Burden Interview (ZBI) and QoL.SF 36-item. Results: All caregivers in the study and control group were female; they also had the same age. The findings reported a significant difference between caregivers of autistic and control groups in burden levels, and around half of autistic caregivers (47.2%) have sever level. Moreover autistic caregivers reported significantly lower quality-of-life, compared with control group in physical functioning and energy/fatigue. Conclusion: caregivers of children with autism show higher levels of burden and lower level of QoL compared to control group. Thus further research is needed to identify coping strategies that can decrease overall burden on family caregiver.
Osama A Samarkandi,
Quality of Life and Subjective Burden on Family Caregiver of Children with Autism, American Journal of Nursing Science.
Vol. 6, No. 1,
2017, pp. 33-39.
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