Volume 9, Issue 3, June 2020, Pages: 67-76
Received: Apr. 13, 2020;
Accepted: May 11, 2020;
Published: May 18, 2020
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John Boulard Forkuor, Department of Sociology and Social Work, Faculty of Social Sciences, Kwame Nkrumah University of Science and Technology (KNUST), Kumasi, Ghana
Odongo Attoh Douglas, Department of Sociology and Social Work, Faculty of Social Sciences, Kwame Nkrumah University of Science and Technology (KNUST), Kumasi, Ghana
Kwao Mariepearl Dekie, Department of Sociology and Social Work, Faculty of Social Sciences, Kwame Nkrumah University of Science and Technology (KNUST), Kumasi, Ghana
This paper reports findings on the challenges and sources of resilience of carers of Persons with Intellectually Disabilities (PwIDs) in Ghana. Semi-structured interviews were used to gather data from ten (10) institutional carers (House Mothers), and five (5) teachers at three different institutions for PwIDs in the Kumasi metropolis of Ghana. The challenges carers face is because of socio-cultural perceptions regarding PwIDs as well as work related constraints. Even though this research confirmed the fear, apprehension and negative comments by family, friends and the public to care work, it also revealed that this could be due to ignorance, lack of understanding and unfamiliarity of the public with PwIDs. Despite the challenges involved with care work such as aggressive behaviour from PwIDs for instance, carers indicated that PwIDs were ‘interesting’ and ‘funny’, making the work enjoyable. The study revealed that religion and the expectation of a future blessing from God were a major source of resilience for carers. Since increased social integration has been suggested to reduce stigma against PwIDs, this study recommends that Ghanaian social workers actively engage in discussions regarding the integration of PwIDs in day-to-day social processes. Furthermore, while it is important to build the resilience of carers, it is equally relevant for Ghanaian social workers to address the source of challenge (in this case stigma and discrimination) that necessitates this resilience in the first place.
John Boulard Forkuor,
Odongo Attoh Douglas,
Kwao Mariepearl Dekie,
Caring for People with Intellectual Disability: Experiences, Social Sciences.
Vol. 9, No. 3,
2020, pp. 67-76.
Alborz, A., McNally, R. & Glendinning, C. (2005). Access to healthcare for people with learning disabilities: Mapping the issues and reviewing the evidence. J Health Serv Res Policy. 10 (3): 173-182 DOI: 10.1258/1355819054338997
Baron-Cohen, S., Leslie, A., & Frith, U. (1985). Does the autistic child have a "theory of mind"? Cognition, 21, 37-46. DOI: 10.1016/0010-0277(85)90022-8
Benzies, K., & Mychasink, R. (2009). Fostering family resiliency: a review of the key protective factors. Child and Family Social Work, 14 (1), 103-114. DOI: 10.1111/j.1365-2206.2008.00586.x
Braimah, I., & Adom-Asamoah, G. (2011). Provision of social services in the Kumasi metropolis, Ghana. In K. K. Adarkwa (ed.), Future of the tree: Towards growth and development of Kumasi (pp. 153-173). Kumasi: University Printing Press.
Capri, C. (2016). Thinking about intellectual disability care: An inter-subjective approach. Doctorate Thesis. Retrieved from: https://scholar.sum.ac.za
Charema, J. (2007). From special schools to inclusive education: The way forward for developing countries south of the Sahara. The Journal of the International Association of Special Education, 8 (1), 88-97
De Giacomo, A., Craig, F., Terenzio, V., Coppola, A., & Passeri, M. G. (2016). Aggressive behaviors and verbal communication skills in autism spectrum disorders. Global Pediatric Health, 3, 1-5 DOI: 10.1177/2333794X16644360
Dominick, K., Davis, N., Lainhart, J., Tager-Flusberg, H., & Folstein, S. (2007). Atypical behaviors in children with autism and children with a history of language impairment. Research in Developmental Disabilities, 28 (2), 145-162. DOI.org/10.1016/j.ridd.2006.02.003
Dozier, M., Zeanah, C. H., Wallin A. R. & Shauffer, C. (2012). Institutional care for young children: Review of literature and policy implications. Social Issues and Policy Review, 6 (1), 1 – 28. DOI: 10.1111/j.1751-2409.2011.01033.x
Fergus, S. & Zimmerman M. A (2005). Adolescent resilience: A framework for understanding healthy development in the face of risk. Annual Review Public Health 26, 399–419. DOI: 10.1146/annurev.publhealth.26.021304.144357
Fitzgerald, J. (2010). Independent living in the community: Are people with intellectual disabilities reaching their full potential? Critical Social Thinking: Policy and Practice, 2, 78-91.
Fletcher, D. & Sarkar, M. (2013). Psychological resilience: a review and critique of definitions, concepts and theory. European Psychologist, 18 (1), 12-23 DOI: 10.1027/1016-9040/a000124
Greene, R. R., Galambos, C. & Lee, Y. (2004). Resilience theory. Journal of Human Behaviour in the Social Environment, 8 (4), 75-91 DOI: 10.1300/J137v08n04_05
Greff, A., Vansteenwegen, A., & Ide, M. (2006). Resiliency in families with a member with a psychological disorder. The American Journal of Family Therapy, 34 (4), 285-300. DOI: 10.1080/01926180600637465
GSS (2014). 2010 population and housing census report: Disability in Ghana. Ghana Statistical Service. Retrieved from http://www.statsghana.gov.gh/docfiles/2010phc/Mono/Disability%20in%20Ghana.pdf
Glumbic, N. & Zunic-Pavlovic, V. (2010). Bullying behaviour in children with intellectual disability. Procedia Social and Behavioural Sciences (2010) 2784–2788. DOI: 10.1016/j.sbspro.2010.03.415
Hervie, V. M. (2013). An empirical study of how parents and teachers experience social inclusion of children with intellectual disabilities. Master’s Thesis, University of Nordland, Norway. Retrieved from https://brage.bibsys.no/xmlui/bitstream/handle/11250/139975/Hervie.pdf?sequence=1
Hutchison, D. E. (2003). Dimensions of human behaviour: Person and environment. Thousand Oaks, California: Sage
Inclusion Ghana (2007). Intellectual disability advocacy strategy. 2012-2014. Inclusion Ghana. Retrieved from http://www.inclusion-ghana.org/resources/reports/Advocacy%20Strategy.pdf
Inclusion Ghana (2018). Special schools for persons with intellectual disabilities. Inclusion Ghana. Retrieved from http://www.inclusion-ghana.org/special-schools.php
Kisanji, J. (1995). Attitudes and beliefs about disability in Tanzania. In B. O’Toole & R. McConkey (eds.), Innovations in developing countries for people with disabilities (pp. 227- 241). Lancashire, UK: Lisieux Hall Publications.
Ledesma, J. (2014). Conceptual frameworks and research models on resilience in leadership. SAGE Open, 4 (3), 1–8. DOI: 10.1177/2158244014545464
Marsh, D., Lefley, H., Evans-Rhodes, D., Ansell, V., Doerzbacher, B., LaBarbera, L. & Pauluzzi, J. (1996). The family experience of mental illness: Evidence for resilience. Psychiatric Rehabilitation Journal, 20 (2), 3-12. DOI: 10.1037/h0095390
Mckenzie, J. A., McConkey, R., & Adams, C. (2013). Intellectual disability in Africa: implications for research and service development. Disability and Rehabilitation: An International Multidiscipline Journal, 35 (20), 1750-175 DOI: 10.3109/09638288.2012.751461
Mitchell, F. (2011). Resilience: concept, factors and models for practice. Retrieved from https://pdfs.semanticscholar.org/c3ea/fad97cfba53640480b3c375b98ce155cb3b0.pdf
Merriman, B. & Canavan, J. (2007). Towards best practice in the provision of respite services for people with intellectual disabilities and autism. Galway: Child and Family Research Centre. Retrieved from http://hdl.handle.net/10379/243
Munyi, C. W. (2012). Past and present perceptions towards disability: A historical review. Disability Studies Quarterly, 32 (2), 1-11
Ndlovu, H. L. (2016). African beliefs concerning people with disabilities: Implications for theological education. Journal of Disability & Religion, 20, 29-39, DOI: 10.1080/23312521.2016.1152942
Oye-Lithur, N., Stickney, S. & Nathan, S. (2007). A simplified version of disability rights in Ghana. Retrieved from http://www.humanrightsinitiative.org/publications/ghana/disability_rights_in_ghana.pdf
Rutter M (1987). Psychosocial resilience and protective mechanisms. American Journal of Orthopsychiatry. 57, 316–331. DOI: 10.1111/j.1939-0025.1987.tb03541.x
Seidman, I. (2013). Interviewing as qualitative research: A guide for researchers in education and the social sciences. 4th edition, London, UK: Teachers College Press
Simpson, G., & Jones, K. (2012). How important is resilience among family members supporting relatives with traumatic brain injury or spinal cord injury? Clinical Rehabilitation, 27 (4), 367-377. DOI: 10.1177/0269215512457961
Slikker, J. (2009). Attitudes towards persons with disability in Ghana. Retrieved from https://www.medbox.org/attitudes-towards-persons...disability-in-ghana/download.pdf
Walmsley, J. (2008). Institutionalization: a historical perspective. Retrieved from https://www.open.ac.uk/health-and-social-care/research/shld/sites/www.open.ac.uk.health-and-social-care.research.shld/files/files/ecms/web-content/shld-web-content/education-resources-home-a-history-of-institutions-jan-walmsley.pdf
Zausniewski, J. A., Bekhet, A. K., & Suresky, M. J. (2009). Effects on resilience of women family caregivers of adults with serious mental illness: The role of positive cognitions. Archives of Psychiatric Nursing, 23 (6), 412-422 DOI: 10.1016/j.apnu.2008.12.004
Zausniewski, J. A., Bekhet, A. K., & Suresky, M. J. (2010). Resilience in family members of persons with serious mental illness. The Nursing Clinics of Northern America, 45 (4), 612-626. DOI: 10.1016/j.cnur.2010.06.007
Zimmerman, M. A. (2013). Resiliency theory: A strengths-based approach to research and practice for adolescent health. Health Education & Behaviour 40 (4), 381–383. DOI: 10.1177/1090198113493782.