Understanding Professionals' Perspectives on Access to Care for Patients with Carcinoma of the Urinary Bladder in Scotland: A Qualitative Study
American Journal of Health Research
Volume 4, Issue 4, July 2016, Pages: 75-81
Received: May 8, 2016; Accepted: May 24, 2016; Published: Jun. 4, 2016
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Khan Redzwan Habib, World Health Organisation, Brisbane, Australia
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Urinary bladder carcinoma is the most frequently occurring cancer of the urinary tract. Like any other types of cancer the diagnosis, treatment and overall management of urinary bladder cancer is not only expensive but also time consuming. During all these procedures, patients face several barriers while accessing care. The physicians and healthcare administrative or policy makers have the opportunity to closely observe patients' situation or their view towards existing policy and support system. Objective of this study is to explore professionals' perspective on access to care for patients with urinary bladder carcinoma in Scotland in order to identify recent progresses and difficulties faced by patients at different stages of management of the disease. Semi structured interview approach was chosen for its suitability for exploring attitudes, values, beliefs and motives. A total of twelve participants were interviewed. All the twelve participants were chosen through purposive sampling. A phenomenological approach was used to explore perspectives of these twelve professionals having experience of treating patients with urinary bladder carcinoma. All the participants despite of the differences in their views have identified backlog and/or long standing waiting list, lack of patient centered care and shortage of infrastructure, as major barriers in access to care for urinary bladder carcinoma patients. The major gaps identified were inefficiencies of the system and lack of focus on bladder cancer. According to the participants' financial deficiency, systemic complication, age group and socio-economic status of patients are the biggest challenges to overcome these barriers. Professionals gave their opinion for increasing the capacity of the service by establishing bladder cancer care centers and also employing skilled workforce in accordance to the patient number in these centers.
Barriers to Care, Gaps in Service Delivery, Cancer Survival, Urinary Bladder Carcinoma
To cite this article
Khan Redzwan Habib, Understanding Professionals' Perspectives on Access to Care for Patients with Carcinoma of the Urinary Bladder in Scotland: A Qualitative Study, American Journal of Health Research. Vol. 4, No. 4, 2016, pp. 75-81. doi: 10.11648/j.ajhr.20160404.11
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Cancer Research UK. Bladder cancer incidence statistics. 2012. http://www.ancerresearchuk.org/cancer-info/cancerstats/types/bladder/incidence/uk-bladder-cancer-incidence-statistics (Accessed 6 September, 2013)
The Scottish Government. Better cancer care, an action plan. Edinburgh: The Scottish Government. Report number: ISBN: 978-0-7559-5857-3, 2008.
Pasbos CL, Botteman MF, Laskin BL and Redaelli A. Bladder Cancer Epidemiology, Diagnosis, and Management. Cancer practice, 2002; 10(6): 311-321.
American Cancer Society. Bladder cancer overview: US. 2012. http://www.cancer.org/cancer/bladdercancer/overviewguide/bladder-cancer-overview-after-follow-u-p. (Accessed 17 December 2012).
Obrey A, and Vasso V. The lived experience of overseas black and minority ethnic nurses in the NHS in the south of England. Diversity in Health and social care, 2004; 1(1): 13-20.
Rachet B, Woods LW, Mitry E, Riga M, Cooper M, Quinn MJ, Steward J, Brenner H, Este`ve J, Sullivan R and Coleman MP. Cancer survival in England and Wales at the end of the 20th century. British Journal of Cancer, 2008; 99: S2–S10.
Richmond C. NHS waiting lists have been a boon for private medicine in the UK. Canadian Medical Association Journal, 1996; 154(3): 378–381.
The Scottish Government. Long Term Conditions Collaborative Improving Care Pathways. 2010. http://www.gov.scot/resource/doc/309257/0097421.pdf (Accessed 17 December 2012)
Wait list management project group. Waiting too long: reducing and better managing wait times. 2006. https://www.doctorsofbc.ca/sites/default/files/waiting_too_long.pdf (Accessed 8 September, 2013).
Underwood W, Dunn RL, Williams C, and Lee CT. Gender and geographic influence on the racial disparity in bladder cancer mortality in the US. Journal of American College of Surgeons, 2006; 202: 284-290.
Shack LG, Rachet B, Brewster DH and Coleman MP. Socioeconomic inequalities in cancer survival in Scotland 1986–2000. British Journal of Cancer, 2007; 97: 999–1004.
Corbin J and Strauss A. Managing chronic illness at home: three lines of work. Qualitative Sociology, 1985; 8: 224-247.
Curtis JR, Wenrich MD and Carline JD. Patients’ perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS. Chest, 2002; 122 (1): 356-362.
Langa KM, Fendrick AM and Chernew ME. Out of pocket health care expenditures among older Americans with cancer. Value Health, 2004; 7: 186–194.
Sangar VK, Ragavan N, Matanhelia SS. The economic consequences of prostate and bladder cancer in the UK. British Journal of Urology, 2005; 95: 59–63.
Yabroff KR, Davis WW and Lamont EB. Patient timecosts associated with cancer care. Journal of National Cancer Institute, 2007; 99: 14–23.
McLeod SA. Qualitative Quantitative Simply Psychology. 2008. http://www.simplypsychology.org/qualitative-quantitative.html (Accessed: 9 September, 2013)
Barriball KL and White A. Collecting data using a semi-structured interview. Journal of advanced nursing, 1994; 19 (2): 328-335.
Dancey A, Rayatt S, Courthold J and Roberts J. Views of UK melanoma patients on routine follow up care. British Journal of Plastic Surgery, 2003; 58: 245–250.
Riechelmann RP, Tannock IF and Wang L. Potential drug interactions and duplicate prescriptions among cancer patients. Journal of National Cancer Institute, 2007; 99: 592-600.
Creswell JW. Research design: Qualitative, quantitative, and mixed methods approaches (2nd ed). New York: SAGE Publications; 2008.
Braun V and Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology, 2006; 3 (2): 77-101.
Kendall M, Boyd K, Campbell C, Cormie P, Fife S, Thomas K, Weller D and Murray SA. How do people with cancer wish to be cared for in primary care? Serial discussion groups of patients and carers. Family Practice, 2006; 23: 644–650.
The Royal College of Radiologists. A national audit of waiting times for radiotherapy. 1998. https://www.rcr.ac.uk/publications.aspx?PageID=149&PublicationID=50
Jiwa, M., Saunders, C. M., Thompson, S. C., Rosenwax, L. K., Sargant, S., Khong, E. L., Halkett, G. K. B., Sutherland, G., Ee, H. C., Packer, T. L., Merriman, G. and Arnet, H. R., 2008. Timely cancer diagnosis and management as a chronic condition: opportunities for primary care. Medical Journal of Australia, 189(2), 78-82.
Kevin, C., Oeffinger, M. and McCabe, M. S., 2006. Models for Delivering Survivorship Care. Journal of Clinical Oncology, 24(32), 5117-5124.
Audit Scotland, 2012. Health inequalities in Scotland Prepared for the Auditor General for Scotland and the Accounts Commission Scotland: Auditor General for Scotland.
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