American Journal of Nursing Science

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Quality of Life Among Thalassemia Children Patients in the Gaza Strip

Received: 16 May 2016    Accepted: 24 May 2016    Published: 4 June 2016
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Abstract

This study aimed to assess the quality of life of children (3-12 years) diagnosed with Thalassemia in Gaza Strip. A descriptive, analytical, cross-sectional design was used. All children 3-12 years old who were diagnosed with thalassemia and live in GS were included in the study (75 cases) with response rate (81.3%). Participants were interviewed by the researcher and completed the questionnaire which focused on quality of life of chronic diseases and included five domains. These domains are physical health, psychological health, social relationships, environment health and personal safety. Validity and reliability of the instrument were tested and the total instrument reliability test (Cronbach's Alpha) was 0.767. The scores for the study domains ranged between 2.81 for personal security domain and 3.66 for environmental health domain. Moreover, the study domains did not show statistically significant difference when compared by sex, living places, monthly income the relationship between parents and recurrent hospitalization. The findings of this study suggest the need of children diagnosed with thalassemia for support in all study domains. Health professionals need to work to minimize the disease's burdens. The current study calls the attention of health policy makers for new policies and new roles for the community health nurses and social workers. The study also revealed that there is a bad need to pay more attention when caring and dealing with thalassemia patients. Special food supplementation should be available in order to improve their physical health, more psychological support from their families and the society is needed. In addition, there is a need to provide safe environment and to enhance personal safety of these children.

DOI 10.11648/j.ajns.20160503.15
Published in American Journal of Nursing Science (Volume 5, Issue 3, June 2016)
Page(s) 106-113
Creative Commons

This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited.

Copyright

Copyright © The Author(s), 2024. Published by Science Publishing Group

Keywords

Chronic Diseases, Thalassemia, Quality of Life, Gaza Strip

References
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Cite This Article
  • APA Style

    Yousef Ibrahim Aljeesh. (2016). Quality of Life Among Thalassemia Children Patients in the Gaza Strip. American Journal of Nursing Science, 5(3), 106-113. https://doi.org/10.11648/j.ajns.20160503.15

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    ACS Style

    Yousef Ibrahim Aljeesh. Quality of Life Among Thalassemia Children Patients in the Gaza Strip. Am. J. Nurs. Sci. 2016, 5(3), 106-113. doi: 10.11648/j.ajns.20160503.15

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    AMA Style

    Yousef Ibrahim Aljeesh. Quality of Life Among Thalassemia Children Patients in the Gaza Strip. Am J Nurs Sci. 2016;5(3):106-113. doi: 10.11648/j.ajns.20160503.15

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  • @article{10.11648/j.ajns.20160503.15,
      author = {Yousef Ibrahim Aljeesh},
      title = {Quality of Life Among Thalassemia Children Patients in the Gaza Strip},
      journal = {American Journal of Nursing Science},
      volume = {5},
      number = {3},
      pages = {106-113},
      doi = {10.11648/j.ajns.20160503.15},
      url = {https://doi.org/10.11648/j.ajns.20160503.15},
      eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.ajns.20160503.15},
      abstract = {This study aimed to assess the quality of life of children (3-12 years) diagnosed with Thalassemia in Gaza Strip. A descriptive, analytical, cross-sectional design was used. All children 3-12 years old who were diagnosed with thalassemia and live in GS were included in the study (75 cases) with response rate (81.3%). Participants were interviewed by the researcher and completed the questionnaire which focused on quality of life of chronic diseases and included five domains. These domains are physical health, psychological health, social relationships, environment health and personal safety. Validity and reliability of the instrument were tested and the total instrument reliability test (Cronbach's Alpha) was 0.767. The scores for the study domains ranged between 2.81 for personal security domain and 3.66 for environmental health domain. Moreover, the study domains did not show statistically significant difference when compared by sex, living places, monthly income the relationship between parents and recurrent hospitalization. The findings of this study suggest the need of children diagnosed with thalassemia for support in all study domains. Health professionals need to work to minimize the disease's burdens. The current study calls the attention of health policy makers for new policies and new roles for the community health nurses and social workers. The study also revealed that there is a bad need to pay more attention when caring and dealing with thalassemia patients. Special food supplementation should be available in order to improve their physical health, more psychological support from their families and the society is needed. In addition, there is a need to provide safe environment and to enhance personal safety of these children.},
     year = {2016}
    }
    

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    AU  - Yousef Ibrahim Aljeesh
    Y1  - 2016/06/04
    PY  - 2016
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    AB  - This study aimed to assess the quality of life of children (3-12 years) diagnosed with Thalassemia in Gaza Strip. A descriptive, analytical, cross-sectional design was used. All children 3-12 years old who were diagnosed with thalassemia and live in GS were included in the study (75 cases) with response rate (81.3%). Participants were interviewed by the researcher and completed the questionnaire which focused on quality of life of chronic diseases and included five domains. These domains are physical health, psychological health, social relationships, environment health and personal safety. Validity and reliability of the instrument were tested and the total instrument reliability test (Cronbach's Alpha) was 0.767. The scores for the study domains ranged between 2.81 for personal security domain and 3.66 for environmental health domain. Moreover, the study domains did not show statistically significant difference when compared by sex, living places, monthly income the relationship between parents and recurrent hospitalization. The findings of this study suggest the need of children diagnosed with thalassemia for support in all study domains. Health professionals need to work to minimize the disease's burdens. The current study calls the attention of health policy makers for new policies and new roles for the community health nurses and social workers. The study also revealed that there is a bad need to pay more attention when caring and dealing with thalassemia patients. Special food supplementation should be available in order to improve their physical health, more psychological support from their families and the society is needed. In addition, there is a need to provide safe environment and to enhance personal safety of these children.
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Author Information
  • College of Nursing, Islamic University of Gaza, Gaza Strip, Palestine

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